This is a difficult one

I put off updating until we had a clearer picture of what was going on. A new lesion was found in Katelyn's humerus (upper arm). I noticed it very brightly while sitting in on the scan and shed many a tear but tried to push it to the back of my mind - as Jason says - I am not a trained radiologist. Unfortunately the results did confirm new cancer. This would most likely be the cause for Katelyn's shoulder pain a few weeks ago. I just knew something was wrong, call it mother's instict. The 3 cm 'spot', which was visible on the MIBG scan at time of relapse, remains unchanged. However, once again, the CT scan was negative. We were in this position in June - a small artifact was seen on the MIBG but not CT scan. By September, we knew this artifact was a tumour because it had increased in sized. The bone marrow aspiration was negative for neuroblastoma. However, the bone marrow trephine biopsy result showed there was still neuroblastoma present in the core of the marrow. So there we have it, a mixed bag of results. Certainly not the results we were hoping for. The neuroblastoma team are discussing Katelyn on Tuesday afternoon. It seems as though we may press ahead with a few more rounds of TVD and then see where we are from there. Meanwhile, we have not closed any doors to other treatment options. This has been so very difficult to write. Please pray; for me and for Jason to be guided towards making the best decisions for Katelyn, for strength for our entire family and for nothing less than a complete earthly healing for our beautiful daughter.