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Welcome to Katelyn Benson's website! This has been created to keep family and friends up to date with the latest news regarding our brave daughter.

At the age of three, Katelyn was diagnosed with Neuroblastoma Stage 4, a rare childhood cancer for which there is no cure. She was diagnosed on Monday 16th May 2005 and since then has undergone 8 rounds of chemotherapy, a 5 hour tumour resection surgery, further high-dose chemotherapy followed by a stem cell transplant, radiotherapy and 6 rounds of Accutane (Retinoic Acid). In September 2006, we discovered that Katie had relapsed and so the battle begins again.

Despite the devastating prognosis, we have great faith that our precious daughter will be granted her miracle cure. Thank you for joining us on our rollercoaster journey. Words cannot express the uplifting joy we feel to know we have such a wonderful "team" standing behind us every step of the way. We thank each and every one of you for the endless love, support and prayers.

We are praying for a miracle!!

Children with cancer are like candles in the wind who accept the possibility that they are in danger of being extinguished by a gust of wind from nowhere; and yet, as they flicker and dance to remain alive, their brilliance challenges the darkness and dazzle those of us who watch their light.

Friday, October 20, 2006

Who needs hair anyway?!

This is the first day that Katie has felt pretty good. I thought it was worth an update. She is hungry and eating loads, an appetite developed out of nowhere! Hopefully she is gaining weight as she need some meat on her bones. We were very excited to learn that Katie has grown an entire centimetre. As some of you may know, chemo and radiation stunts the growth so every little centimetre counts. Ok so she was never going to be a 5'11 catwalk model with parents this height, but it's fabulous to know she's growing!! :-)

The news from the last week; due to a double lumen infection in her Hickman, they decided to pull the line. She was supposed to have another line inserted this morning but the operation was pushed back to this afternoon. (We are hoping to come home this evening.) Dr Ainsel isn't budging and was insistent that it was to be yet another Hickman, as opposed to a port-a-cath tunnelled under the skin. Katie's had two x-rays this week. One was to check her veins to ensure all was well enough for another Hickman insertion. The other was due to persistent shoulder pain. She was holding her left arm in a funny way, it was limp next to her body and her shoulder was drooping. They were slightly concerned she had, somehow, disclocated her shoulder, but fortunately all is well and it looks like muscular pain. Our dear friend, Charly, yet again, made her prescence very welcome and offered her massage services. Lovely!!

Katie is practically bald minus some peach fuzz and her eyebrows. I'll be terribly sad when her beautiful eye lashes start falling out again. But, as we told her, we think she is beautiful.....hair or no hair!

Before I go, I wanted to wish everyone a good weekend. Please pray for miss Katie's blood counts to rise in order for her to start the next round of chemotherapy. Thank you!