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Welcome to Katelyn Benson's website! This has been created to keep family and friends up to date with the latest news regarding our brave daughter.

At the age of three, Katelyn was diagnosed with Neuroblastoma Stage 4, a rare childhood cancer for which there is no cure. She was diagnosed on Monday 16th May 2005 and since then has undergone 8 rounds of chemotherapy, a 5 hour tumour resection surgery, further high-dose chemotherapy followed by a stem cell transplant, radiotherapy and 6 rounds of Accutane (Retinoic Acid). In September 2006, we discovered that Katie had relapsed and so the battle begins again.

Despite the devastating prognosis, we have great faith that our precious daughter will be granted her miracle cure. Thank you for joining us on our rollercoaster journey. Words cannot express the uplifting joy we feel to know we have such a wonderful "team" standing behind us every step of the way. We thank each and every one of you for the endless love, support and prayers.

We are praying for a miracle!!

Children with cancer are like candles in the wind who accept the possibility that they are in danger of being extinguished by a gust of wind from nowhere; and yet, as they flicker and dance to remain alive, their brilliance challenges the darkness and dazzle those of us who watch their light.

Thursday, September 28, 2006

More chemo...

Katie continues to amaze me on a daily basis. Last Thursday she insisted upon going to school, and with her, took her babydoll who has her own "wiggly line" to show the children in her class. School have been very supportive and understanding, and are prepared to work with us so Katie can still have as much of an education as possible.

The surgery to re-insert another Hickman went without a hitch. Within a couple days, she had fully recovered and was running around like normal. We were hoping she may have a port-a-cath which would allow her to swim and would give her more 'freedom'. Unfortunately it wasn't to be, but we went a year looking after Mr. Wiggly, we can cope with a little while longer.

The TVD protocol has been started. Katie receives the drug, Topotecan, on an out-patient basis. After today's chemo, she'll be admitted to the ward to receive the Vincristine and Doxorubicin as in 'inmate'!! Poor Katie has been sick every single morning on the way to the hospital. Her platelet count was down and she had a nose bleed which upset her terribly. For such a young child, Katie has a huge awareness of what's going on around her. We try and not be negative about the relapse although, to be honest, I feel like crumbling.

Sophie is growing growing growing. She's already out-grown most of her newborn clothes. Only a month old, but already a huge part of the family. It's as if she was always here. Her sweet little innocent face is another reason to wake up every day and thank God for we have been truly blessed. Joshua is fine, he's wonderful, happy and supportive. He's been through far too much for a boy of 6, but he's a tough one, and acts the 'man of the house' mostly for Katie's benefit! It's very cute, he's bossy but I tell ya, she can give as good as she gets. Heaven help us when Sophie's old enough to 'play their games'.

Thank you for the endless love, support and prayers.