After I get platelets, I'm going home tomorrow! Hip hip hooray. I am off all painkillers and I'm doing really well. The portacath is a big step up from mr wiggly woo the worm. I can't wait to get home and spend time with my little fishies. I'm having a week or two of treatment and it is a welcome break. With any luck, I will spend minimal time in the hospital and doctor's surgery.
I'm in hospital with a Hickman line infection. I am on antibiotics, paracetamol and I am very miserable. Daddy got me some lovely stickers but even happy smiley faces couldn't cheer me up. Due to the problems I've been having, we are going to pull the line and have a portacath placed (under the skin). I will keep you updated.
I'm doing very well. The femoral line was placed without hitch. I am superwoman! My stem cells were collected over 3 days. I am generally feeling well. A proper update is coming soon.
It's bank holiday Monday so I am lucky enough to have both Mummy and Daddy at home. The weather is grim so we haven't gone out. We recently got a giant trampoline in our garden. It was from ebay! Josh and I stayed up till 9 pm waiting to see if we won the bid and we did, yay! I am having a femoral line placed tomorrow in preparation for the stem cell harvest. Think of me as we have to get up at 5am! My haemoglobin was down to 7.9 so I had a blood tranfusion yesterday...my first in a while. I'm keeping well and looking good. Sally, our new nextdoor neighbour has promised us a little fishy. I can't wait to have my very own pet. I am going to call him Fill with an 'F'!!
I spent the week with Mema and Mummy at Mema's house! That's why we didn't get a chance to update. I've been having GCSF injections in my leg to prepare for the stem cell harvest. Sandra is taking me to see Lilly's ballet show this afternoon. I am so excited. I had my ballet lessson this morning so I'm still in my leotard which I'm going to wear to Lilly's show! Then, we are going out for pizza.
Mummy and Daddy met with Dr. Ainsel on Monday and there was some very good news. My bone marrow and trephine are neuroblastoma free!!! For the next stage in my treatment, I'll be having my stem cells harvested. I will keep you updated. :-)
My hair is growing and I am gaining weight. I look and feel awesome (if I do say so myself). I had my CT scan and MIBG scan. I am stable which is great news. The preliminary results from the bone marrow tests look pretty good but we'll know tomorrow when Mummy and Daddy meet with Dr. Ainsel to discuss the plan of action. My attendance at school has been really good and I am thriving. All is welll with the Benson family. Thank you for checking in!!
Dr. Marcus said my ultrasound scan looked good, my bladder is fine. I will be having a kidney function scan soon. We should know, by next week, the official results from the scan and x-ray. I got a Bob the builder sticker for being such a brave girl. I wanted a Barbie one but Nurse Kathy said they'd run out. I really like Nurse Kathy. I remember her from the first time I was in hospital when I got diagnosed with neuroblastoma.
Good morning! I slept really well last night, so subsequently I am feeling very chirpy. I am off for my pelvic and renal ultrasound scan and an abdominal x-ray. I have told Mummy and Daddy that I am going to be a doctor when I'm older so it's very important for me to be specific with the medical lingo. :-) Fortunately for me, my Daddy will be taking lots of books to read to me. Joshy is at school, Mummy and Sophie are staying at home. After the hospital, they'll take me to school and Daddy will go back to work. Have I bored you enough??!! Love, Katie XOX
